Addressing the hidden struggle: mental health in sickle cell disease
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Sickle Cell Disease (SCD) is a lifelong condition that not only affects the physical health of those diagnosed but also takes a significant toll on their mental and emotional well-being. As patients navigate a life filled with chronic pain, frequent hospitalizations, and the looming threat of complications, the impact on their mental health is profound and often overlooked. The Sentara-EVMS Comprehensive Sickle Cell Program, which opened October 9, is poised to change that by providing a multidisciplinary approach to SCD care, which includes a strong focus on mental health.
The Mental Health Challenges of Sickle Cell Disease
Living with SCD can be emotionally and psychologically draining. Mental disorders, such as depression and anxiety, are alarmingly common among SCD individuals. Depression, in particular, is most prevalent among patients with SCD, with studies estimating that 21.6% to 44% of adult SCD patients experience depression.
Experts say the chronic pain that accompanies the disease is a constant reminder of the illness. “Chronic pain is a prominent feature of SCD that can profoundly impact the lives of individuals with the condition,” said David Spiegel, MD, the Anne Armistead Robinson Chair in Psychiatry, and Chair of Macon & Joan Brock Virginia Health Sciences Psychiatry and Behavioral Sciences at Old Dominion University. “That pain can lead many patients to experience depression, anxiety, and even post-traumatic stress disorder (PTSD).” Dr. Spiegel said the unpredictable nature of SCD flare-ups, adds another layer of stress, as patients never know when they might be struck with debilitating pain that requires immediate medical attention.
Social isolation is another common issue. Frequent hospitalizations and the need for regular medical appointments can disrupt education, employment, and social interactions, leaving many patients feeling isolated and alone which can trigger mood disorders. This isolation is compounded by the stigma that often surrounds the disease, which is more prevalent among African American communities in the United States.
A Comprehensive Approach to Care
Recognizing these challenges, the Sentara-EVMS Comprehensive Sickle Cell Program is dedicated to addressing both the physical and mental health needs of SCD patients. The program brings together specialists in Internal Medicine, Physical Medicine and Rehabilitation, and Psychiatry and Behavioral Sciences to create a holistic treatment plan tailored to each patient's unique needs.
This multidisciplinary approach aims to ensure that patients not only receive top-tier medical care but also have access to mental health professionals who understand the psychological challenges of living with SCD. “Targeted interventions and holistic care are necessary to address the mental health impact and improve well-being,” Dr. Spiegel said. “By recognizing and addressing the psychosocial burden of SCD, the program can enhance the quality of life and provide comprehensive support.”
The Importance of Mental Health Support
Research has shown that addressing mental health in SCD patients can lead to better outcomes, both physically and emotionally. Patients who receive mental health support are often better equipped to manage their pain, adhere to treatment plans, and maintain a more positive outlook on life. This, in turn, can reduce the frequency of hospitalizations and improve their overall prognosis.
The Sentara-EVMS Comprehensive Sickle Cell Program is committed to caring for SCD patients in southeastern Virginia, offering a comprehensive care model that truly addresses all aspects of the disease. As the clinic opens its doors, it promises to bring much-needed attention to the mental health struggles of SCD patients, helping them lead healthier, more fulfilling lives.
To learn more or make an appointment call 757-446-8980 or visit evmsmedicalgroup.com/sicklecell.